Treatment Centers and Clinical Trials
International Society of Amyloidosis -A searchable directory of amyloidosis centers with multidisciplinary diagnostic and treatment capabilities.
ARC: Treatment Centers and Clinical Trials -Tools to help locate experienced treatment centers and explore research opportunities.
Clinicaltrials.gov - The official U.S. database of publicly and privately supported clinical studies. Enter “AL amyloidosis” in the condition field.
Cleveland Clinic Cardiac Amyloidosis Center - the Cardiac Amyloidosis Center, located in Weston, Florida, diagnoses and offers a multidisciplinary team to provide complete care for all types of cardiac amyloidosis
Patient and Family Support
Family Caregiver Alliance - Information for family caregivers, including care planning, emotional wellbeing, respite care, work, and financial concerns.
Amyloidosis Support Group - Support groups, community connections, educational videos, treatment-center information, and multilingual resources.
Financial and Practical Assistance
The Assistance Fund (TAF) - An independent 501(c)(3) organization that helps patients and families facing high medical out-of-pocket costs by providing financial assistance for their copayments, coinsurance, deductibles, and other health-related expenses.
The Health Well Foundation - An independent 501(c)(3) organization providing financial assistance to adults and children to cover the cost of prescription drug coinsurance, copayments, deductibles, health insurance premiums and other selected out-of-pocket health care costs.
Hope 4 AL provides external links for educational convenience. Listing an organization does not constitute an endorsement. Program eligibility, services, and funding availability may change. Patients should discuss medical information and clinical-trial participation with their healthcare team.