Our Story

We began this organization in 2025 to bring awareness to the havoc that AL Amyloidosis creates.

On September 25,2024, my brother was officially diagnosed with AL Amyloidosis. Our lives were forever changed and my brother began the fight of his life. As we settled in to the new way of life with him having chemotherapy treatment weekly, we realized there were not many sources for information, support, and treatment resources. The idea of telling his story really brought new found purpose.

There were many signs early in my brothers decline that could have signaled this disease, but no one realized it. Thankfully, many family and friends have a medical background and we were able to get access to the right care and treatment centers.

One year later, my brother is continuing chemotherapy and immunotherapy and is comfortable with his treatment options. Any one that does not have access to the medical knowledge we had can be left with no idea of the next steps and treatment available.

Not only is AL Amyloidosis damaging physically, it is terminal and that is one of the most difficult thoughts to harbor. With limited resources for support it is difficult to imagine what my brother deals with on a daily basis. There are a handful of clinical research trials for therapies to prolong life, but as of this moment there is no cure and everyday is a blessing.

We hope that we can bring education to the public to aid with awareness and provide helpful resources for patients and their families .